The early signs of ovarian cancer need to be more widely known. Sarah Jarvis talks about how HCPs can become more aware, so that women presenting with symptoms can be diagnosed more quickly.
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Ovarian Cancer
Erica Brockmeier 14 March, 20171 in 50 women will develop ovarian cancer in their lifetime. Those who are diagnosed earlier have a much higher chance of survival. This #ovariancancermonth know the symptoms and make some noise, so that all women are aware.
read more >>Not so rare
Acheson Kerry 10 March, 2017A person living with a rare disease will have a full diagnosis of an average of 4.8 years. We’re following the journey of brothers Tim and Tom, who are at the beginning of their symptoms. Their story, as well as hundreds and thousands like them #NeedToBeHeard.
#NotSoRare
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World Kidney Day
Gaurav Kumar 9 March, 2017#WorldKidneyDay 2017 is focusing on how #Obesity can increase the chance of developing #KidneyDisease. “Obesity may lead to CKD both indirectly by increasing type 2 diabetes, hypertension and heart disease, and also by causing direct kidney damage by increasing the workload of the kidneys and other mechanisms.”
Find out more about the links between kidney disease and obesity >>
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Ovarian Cancer month
Erica Brockmeier 6 March, 2017This month we are supporting #Ovarian Cancer to help spread awareness of the symptoms and get earlier diagnoses. Support this message to educate women and recognise the symptoms, including:
– Bloated tummy
– Increasing need for the loo
– Tummy pain
– Always feeling full
Not so rare
Acheson Kerry 1 March, 2017Did you know – Rare Diseases affect more than 350 million people worldwide? Today we will be supporting #RareDiseaseDay to help spread global awareness #notsoRARE #medcomm
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Not so rare
Acheson Kerry 1 March, 2017Rare diseases are more common than you think – this #RareDiseaseDay let’s care for rare and help spread awareness #NotSoRare
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Not so rare
Acheson Kerry 1 March, 2017Let’s help increase understanding of the reality of #rarediseases #notsoRARE
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Not so rare
Acheson Kerry 1 March, 2017Today is #RareDiseaseDay. Did you know a patient will end up visiting several doctors before getting an accurate diagnosis? Let’s work together to heighten awareness #notsoRARE Engel PA, Bagal S, Broback M, Boice N. Physician and patient perceptions regarding physician training in rare diseases: The need for stronger educational initiatives for physicians. Journal of Rare Disorders, 2013; 1(2): 1-15.
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Not so rare
Acheson Kerry 1 March, 2017We’re launching a blog to illustrate the time it takes for a child to receive a diagnosis for a #raredisease
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Not so rare
Acheson Kerry 1 March, 2017Research into #rarediseases can save and change lives. On #RareDiseaseDay let’s have a common cause to help increase awareness. Engel PA, Bagal S, Broback M, Boice N. Physician and patient perceptions regarding physician training in rare diseases: The need for stronger educational initiatives for physicians. Journal of Rare Disorders, 2013; 1(2): 1-15
read more >>Upcoming Rare Disease Blog posts
Acheson Kerry 28 February, 2017In support of #RareDiseaseDay we are launching a series of blog posts to illustrate the length of time it takes for a child living with a rare disease to receive a diagnosis. The process will be reviewed, from the parent’s perspective looking at the initial symptoms and beyond. Follow the link to find out about Tom. https://onyx-notsorare.tumblr.com/ Stay tuned over the next couple of weeks to find out what happens. #notsoRARE Engel PA, Bagal S, Broback M, Boice N. Physician and patient perceptions regarding physician training in rare diseases: The need for stronger educational initiatives for physicians.
Journal of Rare Disorders, 2013; 1(2): 1-15.
read more >>Liver Awareness Month
Stacey Willis 31 January, 2017Today marks the end of Liver Awareness Month. We’ll be sharing important facts about this vital organ throughout the day. The liver is brilliant at multitasking. Look after it and it’ll look after you! #LiverAwarenessMonth
