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Amplifying the Patient Voice in Rare Diseases

Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.

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Prime GlobalAmplifying the Patient Voice in Rare Diseases
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Rare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?

Emma Sutcliffe, SVP Patient Insights and Solutions, Prime Patient shares her reflections about whether the pandemic has helped or hindered patient engagement and research for rare diseases.

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Prime GlobalRare reflections: has the pandemic helped or hindered patient engagement and research for rare diseases?
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How to make 2022 the best year yet for patient engagement

Olivia Kersey, Patient Engagement Strategist, outlines what we can learn from 2021 to optimise patient engagement strategy and implementation in 2022.

While there would be no such thing as the pharmaceutical industry without patients, it’s only in recent years that collaboration with patients has started to enter the mainstream. While 2021 was a good year for patient engagement, 2022 can be both bigger and better.

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Prime GlobalHow to make 2022 the best year yet for patient engagement
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Patient authorship survey poster presented at ISMPP 2022

The Prime Patient team are proud to have had a poster accepted for presentation at the 2022 European meeting of ISMPP (International Society for Medical Publication Professionals), held virtually on 25-26 January. The poster, one of five accepted across Prime Global, presents the results of an internal survey that aimed to identify barriers and solutions to working with patient authors in medical publications.

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Prime GlobalPatient authorship survey poster presented at ISMPP 2022
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Prime Global acquires HCD Economics, creating an innovative evidence-generating, HEOR, value & communications group

Prime Global, a recognised global leader in medical communications and market access, has strengthened its Evidence, Access, and Patient Practice with the acquisition of HCD Economics, an academically aligned organisation focusing on health economics and outcomes research (HEOR) and real-world evidence (RWE). HCD will work closely with Prime Global’s highly experienced medical communications agencies and specialist consultancies, including market access consultancy, Prime Access, and patient engagement experts, Prime Patient, to deliver integrated evidence-led services.

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Prime GlobalPrime Global acquires HCD Economics, creating an innovative evidence-generating, HEOR, value & communications group
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Creating an effective patient engagement set of practices that is enduring and future-proof

What’s next for different disciplines of patient engagement in 2022? Find out more with Emma Sutcliffe, Jon Hoggard, Olivia K, and Ross Jackson. We are committed to providing Voice to Value practices that are egalitarian and enduring.

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Prime GlobalCreating an effective patient engagement set of practices that is enduring and future-proof
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