Caregivers represent an integral part of patient care, yet their vital role is easily overlooked, and they often lack the informational support needed to provide optimal care for patients. For National Caregiver Month (November), Prime Patient explores how pharmaceutical companies can become “caregiver champions” by recognising the essential nature of carers’ roles and providing much needed educational support services (1).
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In recognition of both Health Literacy Month and Breast Cancer Awareness Month, we’re looking at the unmet treatment education needs of people living with breast cancer who experience low health literacy.
October is World Breast Cancer Awareness Month, and 13 October is Metastatic Breast Cancer Awareness Day. Let’s look at how the views of people living with metastatic breast cancer provide a vital, underestimated component of assessing the benefits of novel treatments.
An estimated 57.4 million people live with dementia worldwide, (1) and unfortunately, clinical trials for dementia treatments have resulted in few pharmacotherapies – none of them curative. (2) (3) (4) For World Alzheimer’s Day, Prime Patient explore how Pharma can collaborate with people living with dementia to optimise the industry’s dementia research and patient community support.
Many agree that disability inclusion in clinical trials is a worthy pursuit, but the historical significance and future impact of pursuing this goal is relatively unexplored. Here, we peel back the layers of this vital mission.
We take a look at the value of patient data, how it can impact Pharma and to what extent it could benefit the industry.
For Pride Month 2022, Prime Patient investigate how Pharma can build stronger, more productive relationships with the LGBTQIA+ community
This Pride Month, Prime Patient takes a close look at the health inequity faced by the transgender community, and what we can do about it.
This month, the results of the 2021 PatientView corporate reputation survey were released. With insights from 240 US patient groups, a number of key findings were reported; here, we take a closer look.
On May 24th, the Prime Patient team was fortunate to have a spot at 2022’s Patient Centricity and Engagement Conference, hosted in London, England. With a veritable smorgasbord of topics up for discussion, we were spoiled for choice! Here we summarise some highlights from the day, kicking off with tips on strengthening patient advocacy collaboration.
Haemophilia is a lifelong genetic disorder characterised by excessive bleeding.(1) Despite the existence of treatments for haemophilia, the condition continues to have major impacts on quality of life, for example in the areas of pain (acute and chronic), joint mobility, and physical function.(1) To mark World Haemophilia Day on 17 April, Prime Patient partnered with sister agency HCD Economics, a consultancy specialising in haemophilia patient research, and haemophilia advocate Laurence Woollard to better understand the existing relationship between patients and industry and how meaningful improvements can be made to the lives of people living with haemophilia (PwH).
Prime Patient team up with Jess Duggan from the SynGAP Research Fund to better understand what this advocacy group wants Pharma to know this Developmental Disabilities Awareness Month.
Prime Patient collaborate with award-winning advocate Trishna Bharadia to explore how industry can better engage with people living with multiple sclerosis (PwMS) this MS Awareness Month.
Patient advocacy and engagement are important no matter the disease area, whether it’s a common condition or one that few have heard of. Following the recent celebration of Rare Disease Day, let’s take a closer look at patient engagement in rare mutation cancers.
In the spirit of Rare Disease Day, which was celebrated on 28 February, we’re looking at the importance of patient engagement in lysosomal storage disorders (LSDs).
Medical publishing is evolving beyond plain language summaries to provide insightful, patient-centred resources to change the course of pharmaceutical research for the better. For patients with rare diseases especially, this could be just what the doctor ordered, writes Olivia Kersey, Patient Engagement Strategist with Prime Patient.
Emma Sutcliffe, SVP Patient Insights and Solutions, Prime Patient shares her reflections about whether the pandemic has helped or hindered patient engagement and research for rare diseases.
We chat with Digital Health Consultant, Barnaby Poulton, about how technology can help amplify the patient voice.
Olivia Kersey, Patient Engagement Strategist, outlines what we can learn from 2021 to optimise patient engagement strategy and implementation in 2022.
While there would be no such thing as the pharmaceutical industry without patients, it’s only in recent years that collaboration with patients has started to enter the mainstream. While 2021 was a good year for patient engagement, 2022 can be both bigger and better.
The Prime Patient team are proud to have had a poster accepted for presentation at the 2022 European meeting of ISMPP (International Society for Medical Publication Professionals), held virtually on 25-26 January. The poster, one of five accepted across Prime Global, presents the results of an internal survey that aimed to identify barriers and solutions to working with patient authors in medical publications.
Prime Global, a recognised global leader in medical communications and market access, has strengthened its Evidence, Access, and Patient Practice with the acquisition of HCD Economics, an academically aligned organisation focusing on health economics and outcomes research (HEOR) and real-world evidence (RWE). HCD will work closely with Prime Global’s highly experienced medical communications agencies and specialist consultancies, including market access consultancy, Prime Access, and patient engagement experts, Prime Patient, to deliver integrated evidence-led services.
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What’s next for different disciplines of patient engagement in 2022? Find out more with Emma Sutcliffe, Jon Hoggard, Olivia K, and Ross Jackson. We are committed to providing Voice to Value practices that are egalitarian and enduring.
It is hard to overstate the importance of social media in today’s healthcare ecosystem. Research has shown us that 74% of all internet users engage with social media, with a huge 80% of those people looking for health-related information or engaging with health-related topics.1 Social media has also become a place for people with chronic conditions to connect with each other, with research suggesting 40% of patients rely on social media to assess how others are dealing with and managing their condition.2
read more >> Promoted by Reuters as ‘The only destination for North American patient centricity leaders’, Pharma & Patient USA 2021 was a 3-day virtual event that took place in November 2021 with a mission to ‘Embed lived experience across the value chain to surpass centricity and embrace ground-breaking integration’. Prime Global’s VP Patient Recruitment Services, Ross Jackson, was in attendance and shares his insights from the event.
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This World AIDS Day, Emma Sutcliffe, SVP Patient Insights and Solutions, takes a look at how far we’ve come and how far we’ve yet to go. Patient activism is a key factor in this progression; Emma discusses her experiences over a near-three-decade career in medical communications and working with patient organisations and how central the patient really is.
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In recognition of Lung Cancer Awareness Month, Olivia Kersey, Patient Engagement Strategist, illustrates current opportunities for the pharmaceutical industry to better meet lung cancer patients’ needs across clinical trials and beyond.
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Patient involvement in clinical trial design has evolved to provide opportunity for patients to be involved in medical publications. This evolution has allowed medical publications to gain invaluable patient perspectives on clinical research, by involving patients as authors in the development of plain language summaries and other, more traditional types of research publications1.
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What is health literacy and why is it important? Olivia Kersey, Patient Strategist, writes in Pharmaphorum’s October Deep Dive
Is Facebook the most effective means of reaching a wide audience when it comes to patient recruitment strategy? Ross Jackson, VP Patient Recruitment Services, shares his thoughts with The Huxley Morton podcast in a new video. He is, literally, the man who wrote the book on patient recruitment for clinical trials using Facebook ads! Listen to the podcast below.
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